30 April 2012

Cording


I have mentioned from time to time some discomfort I have been experiencing in my left arm, where the nodal study was done.  During my mastectomy, the surgeon removed four lymph nodes, which turned out to be nine lumped into four clusters.  From the get-go, the trauma to that side was significantly more than the other side that had no cancer.

Since my second surgery, to swap out the tissue expanders for silicone implants, I've been having more pain on that side.  Last week when I stepped out of the shower I discovered why.  There is a line with lumps stretching from my elbow into my arm pit.  When I straighten my arm with it over my head, it pulls tightly.  At first I thought it was a tendon, although I questioned that because it is over the muscle, not at the end of it.  When I was at my regular doc last week, (Dr. T,) she thought it looked weird and since I was already scheduled to see my breast surgeon today for my six month follow up, she left it alone.

When I saw the surgeon, she was pretty sure I have 'cording', which from what I've been able to gather is quite common.  Axillary Web Syndrome (AWS or lymph cording,) is commonly misdiagnosed and treated by physical therapists.  This is why my internist wouldn't touch it.  She felt I needed to be seen, not just by a physical therapist, but one who specifically worked with mastectomy patients.  It seems like the second surgery exacerbated the mild case I've been battling for the last six months.  The good news is all along I had thought I just had limited range of motion from normal healing but now that we know what it is, it can be treated.

22 April 2012

Cancer Limerick Sunday!

They are not what they're cracked up to be
So it is time to back up and see
My foobs still need worky
Asymmetrical and quirky
The left one's all jacked up to me!

18 April 2012

This Week, Two Steps Forward


I've been quite overwhelmed since surgery with emotions coming to the surface after completing the bulk of the physical challenges associated with my course of treatment.  This week I'm feeling more balanced, although I do not know why.  It could be the mere action of acknowledging the emotions, or allowing myself to feel some of the emotions I was fighting.  Or it could be the realization that I probably have another surgery ahead of me. In any event, I'm just going to accept the calm and enjoy it before another storm hits.

I'm still not feeling very powerful.  I'm struggling with exercise and eating well.  I'm still in a holding pattern on my Couch to 5 K program; I have not been released to run.  I think I'll feel like doing that when I am given the go-ahead.  Or maybe that's just my excuse right now and I'm full of shit.  We'll see in a week.

I have been rather busy working towards getting the house up to speed for summer - garden, pool, patio etc.  I'm putting in motion what needs to happen to keep the kids (and me) sane - camps, sitters, activities.  I'm looking forward to summer.  Except for one thing... the HEAT!

My hot flashes are frequent and getting worse.  They used to last just a couple of minutes, now an episode can go on for 15 or 20 minutes, waking me totally up and making it impossible to fall back to sleep.  I need to do some more research on that.  I'm not sure what the physiological mechanism is that causes them.  I know it's triggered by estrogen starvation and in normal menopause that can be countered by adding estrogen through diet (soy, etc) or supplements ('natural' or prescription hormones.)  I can't do either.  I NEED to starve my body of estrogen in order to ensure that my estrogen positive cancer dies a complete and painful death.  So I have a fan set up on my side of the bed and I throw off the covers a lot.  I sense that hard exercise will help.  The kind of exercise that makes your body sweat, tuning up the internal thermostat.  That's another reason I want to start running.  

My residual chemo symptoms are still plaguing me.  My fingernails still threaten to detach, and are extremely brittle, crumbly even.  I'm combating that by keeping them very short.  I'm monitoring my toenails for the same problem but quite frankly, I can't see that far to be able to tell and I just can't bend that way either.  I'm going for a pedicure tomorrow and I'll have them checked.  If they look stable I can get a nice color put on, if not, clear again so we can see what's going on.  My eyebrows are almost gone.  It's weird how the hair falls out and grows back in waves.  My eyelashes fell out when my head hair started growing back.  My eyebrows fell out when my eyelashes started growing back.  And for you curious types, the pubic hair fell out first and grew back first.  (I know you were dying to ask.)
 

15 April 2012

It's Cancer Limerick Sunday

After each sunset, a dawn
As my symptoms pass, bring it on
This morning I see
I don't look like me
I noticed my eyebrows have gone

12 April 2012

Time to Start Thinking/Blogging About Other Things Besides Cancer


In an effort to continue moving forward, I will be working on writing about stuff other than cancer.

Today's Installment:  The Worst Job EVAR!

While I was in college, I worked at a Shell Gas Station/Circle K convenience store.  It sat a few blocks from campus, and located at the end of a downtown bus run, it was ideally situated for all sorts of shenanigans.

I worked there part-time for my third and fourth year of college, and full time for the summer between them.  I loved the early morning shift - 7:00 am - 3:00 pm in the summer.  It was pretty quiet most mornings and I did not mind the 'busy work', (stocking merchandise, pricing with old timey sticker guns, dusting ancient SKUs.)  I did not like the graveyard shift because it was boring and the dairy stocking had to take place then.  Working in the cooler sucked because it was cold.  But the worst shift was the late shift, 3-11 pm or 4-12 pm.

In addition to the after work rush from about 4 - 6 pm, where we were very busy, there was often what we referred to as the 'munchie rush' which would happen around 9 pm.  People just going out or those half-way through their night and looking for sustenance would flood in.  This rush could last up to an hour where we'd be cashiering the gas pumps as well as dealing with a line of customers demanding their Coke, cigarettes and Doritos.  Inevitably we'd be pulled to clean up a gas spill, or people would need the bathroom key, or we'd be making popcorn/hot dogs, cleaning/changing the tanks on the fountain machine or slushie machine or be doing cash drops into the time-lock safe.  We could easily deal with a hundred transactions in a busy hour and while it made the time fly, we often lost track of customers.  There are a lot of weird people in the world and all of them patronize convenience stores.

We had finished a fairly long rush and my co-worker, Rachel and I were cleaning out the till, wiping up fountain spills, and generally getting the store back in order when I took a bathroom break.  I walked in to the ladies bathroom and was greeted by a veritable Jackson Pollock of excrement.  There was shit smeared on the walls, on the door, on the commode, on the sink, on the floor, on the mirror and even a few flecks on the ceiling.

I walked back up to the front and told Rachel she had to check out the bathroom.  When she came back she asked me how I wanted to handle it.  (Yes, it actually was in our job description.)  We decided through a rather intense negotiation that we would flip a coin.  And the WINNER would pay the loser $40 out of their pocket to clean the bathroom.  This was 1984 and $40 was an entire shift!  I lost.

The first thing we did was raid the store for supplies: trash bags, duct tape, rubber gloves (two pair) a rain hat and a bandanna.  With these items we cobbled together a fairly effective haz-mat suit for me.  Rachel helped tape the trash bags together on me and got me into the two pairs of gloves.  Then we hit the store for bleach, lysol, and six rolls of paper towels.  Armed, I went in.

 The artist had been quite thorough, making sure to smear shit both inside and outside the toilet, on the seat and under it and all around the taps on the sink.  I took breathing breaks often and Rachel did her best to bolster my spirits.  By the time I had finished I had gone through a large green garbage bag of shitty paper-towels, two dish brushes (our entire stock out of 'housewares',) several car air fresheners and four pairs of gloves.  It took me about an hour to clean up the mess.

Rachel pulled the last pair of gloves off the shelf and helped cut me out of the haz-mat suit and we tossed everything into the waiting dumpster behind the store.  Then she did the paperwork for the 'store supplies' we used, and she also did our cash out.  I did the write up for the incident report.  I do not remember what I wrote, but I do remember the next day, when I came in for my shift my boss called me into the office and thanked me for taking care of it, and then proceeded to tell me some of her equally grotesque battle stories.  People are sick, I tell you.

11 April 2012

Still Not Fabulous

I'm just checking in with y'all to let you know I'm still here, just not feeling like blogging much.

I'm still kind of down. It's going to take me some time to work through this. For those of you who have sent kind words through the blog comments, thank you. (If you do not log in to blogger and do not sign your comment, it's completely anonymous, so if you want me to know it's you, sign your name or just email me.)

I am seeing a therapist to help work through my loss issues and I've been doing a lot of reading and some personal writing.

On a positive note, I saw Dr. Kimo yesterday and he says I'm doing magnificently. We got the results from the metabolic test and I am a fast metabolized so I am getting the maximum benefit from the tamoxifen. He liked the look of my bloodwork as well. (I must must admit that my enthusiasm for lab testing has waned significantly.)

My appointment with Two-Drain was uneventful last week. My stitches came out without a hitch. He dissuaded me from attempting to do any vigorous exercise, and he more or less let me know that we may have some "tweaking" to do on the shape of the foobs. I'm more and more thinking, "Meh."

8 April 2012


It's Cancer Limerick Sunday!

The cancer I've come to resent
My new "foobie" scar has a dent
They look and feel funny,
Thrill not, me or honey,
And now I'm emotionally spent

=====
A quick note on where I am.  I've hit a wall emotionally with my cancer.  Having finished my reconstruction, and now in the home stretch of my physical healing process, the emotional reality of my situation is flooding in.

I knew I was not fully dealing with the emotional side during treatment.  I simply didn’t have the wherewithal to do that and physically heal at the same time.  I was focused on "everything's going to be ok," so there was no room for "what does this mean for me in the future?" What will my life/body/outlook be when I'm done?  Will I ever be done?  Can I live with my decisions?  I did try to nurture a no-fault philosophy, which I am thankful for now.  I'm still not wondering "why me?". It serves no purpose.  But I am grieving and there are moments of anger and long hours of sorrow.  

I do not have a lot of emotional energy right now.  I am limiting my activities/contacts/communication because of it. I don't know how long I'm going to be overwhelmed - a week? month? year??  I'm hoping by the time the summer rolls around I'll have it sorted out, because this week was spring break and it sucked to feel like this and have the kids around all day.  No good for me and especially no good for them.

Just as I came to understand the physical effects of chemo were much longer lasting than I had anticipated, the emotional scars are far deeper and uglier than I'd imagined. 

4 April 2012

Doldrums


I have two speeds:  go, and stop.  When I go, I go all out.  When I stop, I do nothing.  I have never been good at taking it slow or taking baby steps.  This is disastrous for me right now.  I had a terrific month in March, exercising, watching what I was eating and feeling well.  Surgery has thrown me back into the doldrums.  I would really like to spend the rest of the day, week, month, in bed.  I can literally feel my core muscles that I worked so hard on last month turning back into goo.  The doxycilin is making me nauseous so I have to eat and fruits/protein/veggies don't help.  That crap wants starch in my belly in order for it to feel better.

I'm a week out of surgery and I feel pretty good physically, except for having lost my groove.  Again, my right side is awesome, my left, lagging behind.  I am having difficulty feeling on top of myself mentally/emotionally.  Part of it is the exhaustion of having two kids bark "I'm bored!" thirty times a day while they are on spring break.  (Crafts, walks, playdates, ipods and books notwithstanding.)   Maybe I should make them do the taxes?  

I have tried to live in the moment during this whole journey, not wanting to have to deal with a kind of post-traumatic response after I'm 'done'.  (Will I ever be done??)  My feelings have changed, adjusted and matured. My knee-jerk reaction to my boobs turning on me was, "Off with their heads!"  I'm only now realizing what that means, how it is changing/will change my life and how much I miss having them.  My new normal hasn't shaken out yet.  I'm still too raw figuratively and literally.  I don't know how long it will take until the new normal feels normal.  I just know it isn't that way now.

But I want my life to return to normal.  Without any surgical or chemical roadblocks but with my new found enthusiasm for saying no to stuff I don't want to do.  I've got a whole lot of taking care of myself I'd like to get done.  But it's hard to start.  I want to be doing, not starting to do.  And so I find myself kind of in the doldrums.  If I can't go full speed ahead, what's the point?  (Not that I haven't already been gardening and doing stuff my doc said I wouldn't be able to do...)  I am eager to re-start my couch to 5 K program and get back to doing core work with a trainer at the gym.  I want to be able to drive to run errands and ferry the kids around.  My arm hurts but it's not bad.  I haven't had painkillers for days.